Friday 19 July 2019

Thank You letter to My Child's School





Chloe aged 5, using her cane, walking to school holding hands with her friends.

I can’t believe that 7 years have passed and next week I will pick up my daughter for the last time from your school gates. I was so scared of giving my four-year-old into your care. I had so many questions; would you look after her, how would she manage, would she make friends, would you be able to make the adjustments needed so she could learn? I had already been through so much heartache, loss and acceptance. I knew how much she had to offer but I also knew it wasn’t an easy task. Everything is so much harder and takes longer to process when you can’t see very well and rely on Cochlear implants to hear. A congenitally deafblind child who learnt using braille was highly unusual and there was no precedent to follow. We needed a willing school up for a challenge to welcome her into their community.

We thought long and hard about where she should go, what size school would be best, considered the buildings and outside space she would have to navigate and tried to assess the attitude and ethos of each place we visited. I will never forget the morning we sat in the Headteachers office and she looked us in the eye and said, “we would LOVE to welcome Chloe to our school.” I knew you genuinely wanted her and that made all the difference.

Tonight, I watched Chloe give a brilliant performance in the end of school production. She even started the whole thing off. There she was, centre stage ordering cast members around (in role) and it took my breath away. You have allowed her to find her voice, to blossom and grow into the kind, feisty, funny, stubborn and complex 11-year-old she is now. Often vulnerable and sometimes frustrated she feels accepted and part of the school community, just as we hoped. She has friends, she has despite all the barriers to her learning done better than anyone could have predicted academically, and she still wants to go to school every day which says so much for the security you have given her.

I want to thank you for being willing to work with me and the team of people Chloe comes with that enable her to be in mainstream education. Your SENCo has been worth “a pot of gold” (Chloe’s words) to me and supported changes in the background that made sure Chloe carried on progressing. When things got difficult, she helped solve the next puzzle and carved new pieces if necessary so the fragile picture would hold. It wasn’t always an easy experience, but I trusted that I would be listened to and together we worked out solutions so that the bumps in the road were navigated safely.

I know I will miss walking her to school and being able to hand her into your care knowing she will be acknowledged, celebrated and accommodated so well. You have never made her feel less than any other child because she learns so differently. From the Sense Pompom challenge to Chloe running a Friday lunchtime Braille club you have encouraged her to accept herself and show others what she is capable of. Each year I held my breath while she was introduced to her new teacher and they quickly got up to speed with the team that accompanies her and the challenges Chloe faces. From her wonderful foundation teacher who gave her an exceptional start at the school to the year 6 teacher who gave her the courage to go on residential and helped her gain some independence you have never let her down.

Thank you for providing such a great experience at Primary School, for recognising her achievements and getting her ready for the next big adventure. We will never forget what you have given our family and I suspect you may remember Chloe for a long time to come.

With so much gratitude,

Jane




Thursday 13 June 2019

11th Birthday



Chloe wearing a striped red and white jumper leaning over a chocolate birthday cake

My darling girl today is your birthday and your Dad and I are celebrating without you. Instead of the big cuddles and shrieks of joy there was silence this morning until the cat decided to jump on to our bed and purr. I think she is missing you nearly as much as we are.
Today you are celebrating becoming eleven with sixty other children in the damp and drizzle on your year six residential. I feel  there is a massive part of me missing but I am so proud that you are there joining in with all the activities. I won't speak to you to wish you happy birthday because I know it will make it worse for both of us but I have sung to you many times in my head today.
I am so blown away that you are there with your classmates, that yesterday you went kayaking and Coasteering and were in and out of the water all day. It is a remarkable achievement particularly as you are not fond of the sea or beaches and that you have obvious concerns about keeping your processors safe- you are so dependant on them. I know I am biased but it is truly impressive. Your spirit of adventure always shines through.
I am struggling with the lack of contact but at least I get updates morning and evening from your specialist support workers. I am so glad you loved the presents I packed and hope the card I painstaking Brailled made sense. It's these little things I can do which ensure you get to experience things on your terms. I know your classmates are planning on giving you a Braille card as well. This knowledge (which brought tears to my eyes when I found out) helps me remember that people are looking out for you.
Eleven feels really big and I know you are growing up and moving away from me- just as it should be. This is your last few weeks with the school and classmates that know you so well. Transition preparations have begun and this morning in your honour your dad and I learnt the bus route to your new senior school. Your orientation and mobility officer put us through our paces so we can support you in September. It is scary for us all but I have to trust that the team of professionals around you are doing all they can to make this big change a success.
One thing you will have is a group of friends who will have your back. They helped you celebrate your birthday last week and as I sat on a separate table listening to you chatter and laugh I realised that my birthday wish for you had come true. You are liked and accepted and this lovely group of girls are going with you to high school. This is massively reassuring for you and for me too.
Dearest Chloe I cannot wait to see you tomorrow and carry on celebrating your brilliant life. I am looking forward to cuddles, stories and just having you near again. I will be ready though when I need to let you go again.

All my love always,

Mum